Hey everyone, this is Skylars Dad. So sorry for the long delay in updating her website. Life has not been the best for us in the last few months. Skylar has been through quite a bit and she is not doing very well. Over the last few months we have searched and searched for treatment and options to help Miss Skylar. We traveled to Washington D.C. for a few months to try an experimental medicine that worked well for about 3 months. Then she had new tumors forming throughout her body, so we could not continue that protocol. She has two very large tumors on each side of her skull. Also there are two very large tumor inside, one on the stomach and the other around her kidneys.
At the beginning of May of this year, the doctor told us that Skylar's body was no longer producing bone marrow and without continuous transfusions she would get weaker and weaker and drift off to sleep. On May 12th Skylar suffered a pretty severe stroke and it effected her entire right side. She lost her ability to speak and swallow for about 2-3 days. We brought in Hospice per Skylar's previous wishes if this was to happen. About 6 days later on the 17th she suffered her 2nd stroke completely immobilizing her right side. Her mind is still there and she trys very hard to be brave and communicate with us as best she can. She does get frustrated because she cannot be as independent as she always has been.
Yesterday, Monday the 25th, she had her first seizure. She has lost all the feeling from the waist down. As of now we are keeping her very comfortable and staying by her side 24/7. Please continue all the prayers for her as you have all this time. I will update this site more often every couple of days....I promise. She gave that cancer a run for its money. Its been a 5 year battle and the strength she has shown has amazed me and made me so proud of my little girl. I think she is ready to be an angel. Time for her to get her wings, be healed and made whole again. Time for the pain to end and have a much needed break from the battle of cancer.
Subscribe to:
Post Comments (Atom)
5 comments:
Chris, Marcie, and SKYLAR,
Hey guys! It's Kelly Hostetter... I used to work in the clinic. I am so saddened to read the latest update on Skylar. I want you guys to know there isn't a day that has gone by that I have not thought of you all. I am so blessed that I was able to see Skylar's beautiful smile and her quirky little ways. PLEASE PLEASE PLEASE give her a hug and kiss for me and let her know that I am praying for her. If there is ANYTHING I can do for you all, PLEASE don't hesitate to ask. Love you guys!!!!
Hello,
This is Melina, I am the mom of Levi who was also the patient of Dr. Fisher and Dr. Meck. We live in New Castle and in some distance way we are related to your Grandma Phyllis Lamb. I heard the news today about Skylar and I am just heartbroken. We got to hang out with her at Relay last year and she touched me deep in my soul. She took Levi's little sister Kayleigh for a walk loooking for glow in the dark necklaces that night. She and Levi rode on a golf cart with Dr. Fisher for the Survivor Lap. I considered myself BLESSED to have gotten to meet her. You are in our prayers. With love from one cancer family to another...
Melina, Levi's mom
www.caringbridge.org/va/levi
Skylar received her wings on Tuesday, June 2, 2009.
She is now free.
I only knew her for a short time but she deeply touched my heart and I will never forget her.
Everyone her knew her, will miss her spirit and remarkable courage.
Hey I just watched an episode of Oprah's Big Give being shown over here in the UK and came online to see how Skylar was doing. So sorry to see she lost her battle and I hope you are managing as best as can be expected.
Post a Comment